Deep Brain Stimulation
So at Colby's Botox and Phenol appointment Deep Brain Stimulation was brought to our attention. I had heard about it before but it's kind of the last step for dystonia. I researched it about a year ago but we decided to try a baclofen pump instead. You actually have to do the pump first before you can even consider DBS. So we know have Colby's records at another neurologists office. She will review them and then let us know if he's a candidate. Kind of a scary thing. I don't know if I want him to be a candidate or not.
If they ruled it out then it wouldn't be my decision to have him go through another surgery. How chicken is that? All the articles that I have read on it talk about them being awake for the surgery and having to give feedback on the placement. One, how scary would that be for a 4 year old and two, how are you going to get feedback from a kid who's non-verbal? Anyway, this doctor is supposed to be good. Did her fellowship with some of the top people doing this type of procedure and all that good stuff. Still I'm not thrilled with the idea of putting electrodes into my sons brain. Can you blame me? Anyway here is a Wikipedia article on it if you'd like to learn more.